The Republic of T.

Black. Gay. Father. Vegetarian. Buddhist. Liberal.

I Am Tired Of Being In Pain

Be kind to your knees. You’ll miss them when they’re gone.

- Mary Schmich

I used to wonder what the phrase above — from Chicago Tribune columnist Mary Schmich’s now famous column meant. I no longer have to wonder.

The knees were not the first to go, in my case. It was the eyes. But the knees now appear to be on their way out. And they are not going quietly.

Actually, it started a while back. Far enough, in fact, that I can’t pinpoint when it started. For a while, the various methods I turned to to treat it worked pretty well. If I took an over-the-counter pain reliever, and wore a knee brace or a less obtrusive band below the kneecaps, it subsided somewhat.

By “it” I mean pain; burning, searing pain around and behind my left and right kneecaps. In my case, it starts when I’m sitting down, especially if I’ve been sitting down for an extended period. Standing up usually relieves it. Putting my feet up also works. But now the various methods I’ve tried have stopped working. Even standing up doesn’t offer as much relief as it used to. Once the pain starts, it’s there for the duration of the day.

I finally went to the doctor a few weeks ago, and after an examination and x-rays, the diagnosis cam back as chondromalacia patella.

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Chondromalacia patellae (also known as CMP) is a term that goes back eighty years. It originally meant “soft cartilage under the knee cap,” a presumed cause of pain at the front of the knee. This condition often affects young, otherwise healthy athletes.

Chondromalacia is due to an irritation of the undersurface of the kneecap. The undersurface of the kneecap, or patella, is covered with a layer of smooth cartilage. This cartilage normally glides effortlessly across the knee during bending of the joint. However, in some individuals, the kneecap tends to rub against one side of the knee joint, and the cartilage surface become irritated, and knee pain is the result.

The term “chondromalacia” sometimes is used to describe abnormal-appearing cartilage anywhere in the body. For example, a radiologist might note chondromalacia on an MRI of an ankle.

Pain at the front of the knee is common in young adults, especially soccer players, gymnasts, cyclists, rowers, tennis players, ballet dancers, horseback riders, volleyball players, and runners. The pain of chondromalacia patellae is typically felt after prolonged sitting, like for a movie, and so is also called “movie sign” or “theater sign”. Snowboarders and skateboarders are prone to this injury, particularly those specializing in jumps where the knees are under great stress. Skateboarders most commonly receive this injury in their non-dominant foot due to the constant kicking and twisting that is required of it during skateboarding

That’s at least one potential diagnosis. Patellofemoral Pain Syndrome is one that goes hand in hand with the above. Osteoarthritis is another. But I get the sense that my doctors are making educated guesses more than diagnoses at this point.

The point is, I hurt. I hurt more often now than I used to. It’s getting to the point where I have to leave my desk sometimes, and work in the lunchroom with my feet up in a chair to get some relief. At home, if I’m sitting on the couch, my feet are on the coffee table to keep my knees straight. Both at work and at home, I have footrests under my desk that allow me to sit without bending my knees.

In the past week, I’ve started standing on the Metro in the morning, instead of sitting down. I may start doing so on the bus too. The reason being, I can tell right away if it’s going to be a good day or a bad day, pain-wise. If I start feeling pain while sitting on the bus, it’s usually too late. The pain will stay with me, at various levels of intensity, throughout the day.

Thus far, nothing works to get rid of it. At least not in the short-term. I bought ankle weights, so I could to the exercises my doctor recommended, and I have my first physical therapy appointment this week. But the benefits of exercise will build up and will only be effective over time. The problem is, I’m in pain now.

I’ve spent enough time standing in pharmacy looking at shelves of over-the-counter pain relievers to know that: (a) they’re all basically the same — either ibuprofen or acetaminophen, sometimes buffered with aspirin and/or caffeine; (b) not one of them does me a damn bit of good. (For example, I took some this morning, am still in pain now, and still have to wait 6 hour before I can take another dose.)

I have another appointment with my doctor to talk about pain medications. There’s a problem, though. I’m a recovering addict and alcoholic. If you’re talking serious pain relief, you’re usually talking opiods. That’s a big danger sign for me. I don’t want to do anything that might put my sobriety at risk. But at the same time, I don’t want to be in pain on a daily basis. I’ve read that both chondromaclia patella and osteoarthritis are treatable but not curable, and both lifelong conditions. So, something’s gonna have to give.

I know there are anti-depressants out there that are used for pain management. I’m hoping that will be one option for me. Because I might need it for more than just pain, if this keeps up. I can understand why people with chronic pain are more likely to experience depression. Like I said, can tell right away if it’s going to be a good day or a bad day pain-wise. Usually, though, I don’t find out until my day’s already underway. So it means sitting at work with pain that usually makes me want to pound desk, scream, cry or some combination of all the above. I usually feel like going home, but I know if I do I’ll still be in pain. I’ll just be in pain in a different place. If I’d known when I woke up this morning that today was going to be a bad day pain-wise, I probably wouldn’t have bothered to get out of bed.

I’m even more worried about how it’s going to effect my activities. Right now, I’m dreading sitting down to dinner this evening. (More and more often, at home, I eat my breakfast and lunch while standing at the kitchen counter.) We’ve got a vacation planned this summer that will involved a long road-trip there and back. I’m already thinking “What am I going to do?”

What I am going to do today is hurt. What I’m going to do today is be in pain. What I’m going to do today is live with the pain that started this morning (at least one coworker noticed me wincing during the staff meeting). It’ll accompany me on my ride home, sit with me during dinner, haunt me while I’m spending time with the kids before bedtime, and linger until I finally go to sleep tonight.

Tomorrow may be a better day, with less pain. But today is not. Today, I am tired of being pain.

4 Comments

  1. T, I know I’m a bit of a one-trick pony on the subject, but have you considered medical cannabis for your pain management?

    I know as a recovering addict you would have concerns about this. So many in the recovery community see cannabis as just another illicit drug, addictive, harmful, and non-medical.

    But if your alternatives are living with severe pain and gulping down anti-depressants or gulping down toxic addictive opioids, using medical marijuana is probably the best option.

    Plus, as we’ve been developing medical marijuana strains, there is a ProjectCBD.com that is breeding for non-psychoactive CBD, the cannabinoid most associated with anti-inflammation and pain modulation and less THC, the “high” cannabinoid.

    You’re in DC, right? The rules have just been promulgated for the program. I seriously recommend that you check it out.

  2. I know this sounds like a pretty out there suggestion, but I got HUGE relief from my knee pain and plantar faciitis when I ditched my shoes and started going barefoot! More precisely, I opt for ‘minimally shod’ which means I wear soft soled shoes like leather moccasins or zem sand boots so my feet don’t get dirty, but they have no structural support to them at all. A few years ago, I spent months in a cast, then twice a week for several month in PT and on medicine that tore up my stomach like crazy. It took over a year to get the PF to go away in my right foot. Then it appeared in my left foot! Before subjecting myself to another year of torture I did more research and opted to try going barefoot. The first 2 weeks were hard, because I was using a lot of foot and leg muscles that I didn’t usually use, but as my feet got stronger, that got better. Within 6 weeks my PF was gone! All my knee pain was gone with it too!

  3. I’m sorry to hear you’re in so much pain and I hope you can find something that helps to manage it without creating other issues.

  4. Acupuncture is amazingly helpful to me! Regular visits to a good Doctor of Oriental Medicine can relieve the pain and address the inflammation cascade. I’ve had 100% success with a ruptured disk in my back – for which I was also steered toward surgery, but thankfully didn’t have to have because of acupuncture – and with addressing a recent development: arthritis in my shoulders. The pain relief started for me within an hour of being pinned and the duration of relief grew with each treatment. Good old-fashioned epsom salt baths and alternating hot and cold packs also helped. Everyone’s body is different so there’s no guarantee you’d have the same results, but in weighing the costs and risks of surgery, acupuncture (every week 1-2xs for at least 6 weeks to start) is my best recommendation. Good luck!

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